| |

    
Local & National
Resources
Resource Guide
The information below was produced by our Chapter’s
Community Outreach Committee. We make every effort to keep this data
as
up to date as possible. If you find any information is incorrect, please
notify us at 248.355.1133 or metrodetroit@jdrf.org.
This information is provided strictly as a resource. JDRF does not
evaluate
or recommend specific programs, corporations, organizations, institutions,
or medical care providers. To obtain a printable version of our local
Resource Guide, please click
here.
CONTENTS
Section 1: Introduction
Section 2: About JDRF
Section 3: When Your Child Is Diagnosed
Section 4: Friendly Listener Support Group
Section 5: Diabetes Educators
Section 6: Diabetes Pediatric Medical Services
Section 7: Diabetes Doctors
Section 8: Support Groups
Section 9: Web Sites To Explore
Section 10: Health Insurance
Section 11: Companies That Donate Supplies
Section 12: Resource/Assistance Agencies
Section 13: Legal Issues Regarding Diabetes
Section 14: Traveling With Diabetes
Section 15: School Issues
Section 16: JDRF Bookstore
Section 17: Research Updates
Section 18: JDRF Metro Detroit & Southeast Michigan
Chapter
Section 19: JDRF Membership Information
Section 20: Diabetes Dictionary
1. INTRODUCTION
The mission of the Juvenile Diabetes Research Foundation (JDRF) is to find
a cure for diabetes and its complications through the support of research.
JDRF is providing this information to enable you to more effectively deal
with the disease of diabetes, whether you, your child, your spouse or someone
else that you love is afflicted with the disease.
2. ABOUT JDRF
JDRF began in 1970, when parents of children
with diabetes founded the organization to raise money and awareness
for diabetes
research. In a typical
year, over 80% of every dollar raised by JDRF funds diabetes research
and research-related education. JDRF gives more resources to diabetes
research
than any other nonprofit, nongovernmental organization in the world – more
than $1 billion since its founding in 1970. JDRF’s mission
is constant: to find a cure for diabetes and its complications through
the support of
reach. For more information, visit JDRF’s national web site at www.jdrf.org.
back to top
3. WHEN YOUR CHILD IS DIAGNOSED
Hearing that your child has a chronic, incurable
disease is likely the most traumatic news that a parent could receive.
Managing the day-to-day
routine of diabetes care is difficult enough, but in combination with
the knowledge of diabetes’ complications, the disease can be
overwhelming. Some tips for coping include:
- Lose the guilt. Diabetes
happened to your child – you were not
responsible. Focus on providing care, rather than assuming blame.
- Reach out for help. This
resource guide provides a list of diabetes professionals, support
groups, and a list
of friendly listeners
(parents of children with diabetes who fully understand what you are dealing with). Also
included is a “diabetes dictionary” to help you become
familiar with words associated with diabetes.
- Don’t be afraid to ask questions.
Write your questions down and ask your child’s doctor
any questions that you have about the disease or your child’s
care. Many fears are borne of ignorance.
- Educate yourself. This resource
guide provides numbers, websites and links to books and information
on diabetes.
- Take care of yourself and
your family. Don’t
let diabetes rule your family. Cope as best you can and live
your life
as normally as
possible.
-
Fight back! Raise funds for research by getting involved in local
JDRF
events. For many
families, attending a local JDRF “Walk to Cure
Diabetes” provides
hope and is often very emotional and uplifting.
back to top
4. FRIENDLY LISTENER SUPPORT GROUP
The following is a list of JDRF volunteers who
are available to talk with you about their experience in dealing with
diabetes. When available, their connection with diabetes and the city
in which they live are noted.
Dr. Linda Bolton
Adult son with diabetes
West Bloomfield
248.816.1420
auntiedoc@comcast.net
Angie Marcinelli
Teen son with diabetes
Bloomfield Hills
248.851.7847
Linda Stein
Teen son and daughter with diabetes
Beverly Hills
248.647.8763
Kathi Farrell & Ed Dinkgrave
Young adult son with diabetes
Livonia
734.422.8398
Kathy Lutzenkirchen
Teen daughter with diabetes
Shelby Township
586.566.9107
Connie Fontaine
Pre-teen daughter with diabetes (on pump)
Grosse Pointe
313.882.6403
Paula Smolenski
Teen son with diabetes (on pump)
Grosse Pointe
313.882.4673 |
Jimmy Coon
Early teen with diabetes
Grosse Pointe
313.886.6891
dbcoon@comcast.net
Kim Hartman
Adult with diabetes
East Lansing
517.381.0810
jthksh@msn.com
Gloria Janssen
Pre-teen son with diabetes
Fenton
810.750.6173
ahnalona@msn.com
Kelly Jeffrey
3-year old son with diabetes
Bay City
989.671.0266
mattjeffrey@chartermi.com
Kathy Lammers
Teen son with diabetes
East Lansing
517.332.7101
lammers820@comcast.net
Dirk Meister
6-year-old daughter with diabetes
South Lyon
248.486.3147
dirkmeister@sbcglobal.net
Sara Tufts
4-year-old son with diabetes
Flat Rock
734.783.2611 |
back to top
Cathy Falvey, CDE
William Beaumont Hospital, Royal Oak
248.551-2460
Margie Maly, RN, BSN, CDE
Debbie Consiglio, RN
Sandy Deykell, CDE
Children’s Hospital of Michigan, Detroit
313.745.5532
Ruth Wagner, RN, BSN
Candy Buckland, RMA
Diana Barlage, RN, CDE
Nuggett Burkhardt, RN, MA, CPNP, CDE
University of Michigan, Ann Arbor
734.764.5175
Josie Terrasi, RN
Monroe County Health Department, Monroe
734.240.7848
Tina Parmann, RN, CDE
Joan Lundblad, RN, BSN, CDE
Noreen Dear, Dietician
Port Huron Hospital, Port Huron
810.989-3362
Julie Dunneback, MSN, APRN, BC, CPNP, CDE
Sparrow Health System, Lansing
517.364.5490
Debbie Bezaire, MSN, CPNP, CDE
Betsy Pollock, RD, CSP, CDE
Renee Thurman, RN, BSN, CDE
St. John Hospital, Detroit
313.343.4971
back to top
6. DIABETES PEDIATRIC MEDICAL SERVICES
Children’s Hospital of Michigan
Endocrinology Department
3901 Beaubien Blvd.
Detroit, Michigan 48201
313.745.5531
Sparrow Health System
Regional Children's Center
Pediatric Endocrinology Services
1200 E. Michigan Ave., Suite 410
Lansing, Michigan 48909
517.364.5490
St. John Hospital
Pediatrics of Specialties Office
Professional Bldg. 2
22101 Moross Road, Suite 273
Detroit, Michigan 48236
313.343.3481
University of Michigan Health System
Department of Pediatric Endocrinology
1500 E. Medical Center Drive
Ann Arbor, Michigan 48109-0718
734.764.5175
William Beaumont Hospital
Pediatric Endocrinology Clinic
3535 West 13 Mile Road, Suite 747
Royal Oak, Michigan 48073
248.551.0487
Dr. Muhammad Jabbar
One Hurley Plaza
Hurley Children’s Clinic
Flint, Michigan 48503
Dr. Peter Gerrits
Dr. David Transue
3535 West 13 Mile Road
Royal Oak, Michigan 48073
Dr. Bernard Degnan
22201 Moross
Detroit, Michigan 48235
Dr. Ming Chen
Dr. Liselle Douyon
Dr. Carol Foster
Dr. Nancy Hopwood
Dr. Josephone Kasa-Vubu
Dr. Delia Vazquez
Dr. Mark Watkins
University of Michigan
1500 East Medical Center Drive
Ann Arbor, Michigan 48109
Dr. Nedim Cakan
Dr. Jose Cara
Dr. Kathleen Moltz
Children’s Hospital of Michigan
Detroit, Michigan 48201
Dr. Ayman Akkad
Dr. Doug Henry
Sparrow Health System
1200 E. Michigan Ave., Suite 410
P.O. Box 30480
Lansing, Michigan 48909
back to top
8. SUPPORT GROUPS FOR PARENTS & CHILDREN
Support Group for Parents of Children, Adolescents and Teens
with Diabetes
Call: St. John Medical Center, 1.888.757.5463
Meeting Location: 46591 Romeo Plank, Macomb
Meeting 4th Tuesday of each month from September – April (except
December), 7:00 p.m. – 8:00 p.m.
Diabetes Youth Support Group
Contact person: Cathy Falvey, CDE – 248.551.2460
Meeting Location: William Beaumont Hospital, 3601 W. 13 Mile,
Royal Oak
Meet 2nd Monday of each month from October – May, 7:00 p.m.
-8:00 p.m
Diabetes Support Forum
Contact people: Karen and Kevin Rist – 248.546.6931
Meet in Berkley area at members’ homes. Any age child and family
included
Meet monthly, usually on Wednesdays from 7:00 p.m. -9:00 p.m.
Pediatric Diabetes Support Group
Contact person: Joan Lundblad, CED – 810.989.3362
Meeting Location: Port Huron Hospital, 1221 Pine Grove Ave.,
Port Huron
Sweet Kids Connection
Contact people: Sally Eder – 734.973.6788, Marie Williams – 734.662.2717or
April Wright - 734.995.0143
Serves the Ann Arbor area. Sponsors family events and parent
meetings
Downriver Diabetes Support Group
Contact person: Sue Robinson – 734.658.5902
Meets 2nd Wednesday of each month 6:30 p.m. - 8:30 p.m., Meridian Elementary School, Grosse Ile.
Website: www.downriverdiabetes.com
Genesys West Flint Campus (Beecher and Ballanger)
Call 810.762.4455 for more information
Meet 1st Tuesday of each month (except January, June, July and
August), 3:00 p.m. – 5:00 p.m.
SE Michigan Insulin Pumpers
Contact person: Kathy Korol – 734.578.3029 or kkorol@yahoo.com
For insulin pump users of all ages
Meets monthly at 1:30 p.m. at the Troy Public Library, Troy.
back to top
9. DIABETES WEBSITES TO EXPLORE
www.jdrf.org
Juvenile Diabetes Research Foundation website. Includes the latest news
and breakthroughs in diabetes research, the activities of JDRF, and special
sections devoted to children with diabetes and the newly diagnosed..
www.webmed.com
Features interviews with researchers, parents and patients and highlights
areas of medical interest and importance.
www.diabetes.com
www.michigan.gov
Michigan Department of Community Health. Click on Health Care Coverage/Medicaid
Programs/Children’s Special Health Care Services
www.diabetes.org
www.insulin-pumpers.org
www.childrenwithdiabetes.com
10. HEALTH INSURANCE
MIChild
A health insurance program for uninsured children. 888.988.6300
The Medicine Program
Provides prescription medication for people who do not have adequate
insurance coverage or are experiencing financial hardship – no toll
free number but can be
reached at 573.996.7300. www.themedicineprogram.com
back to top
11. COMPANIES THAT DONATE SUPPLIES
Medisense Meter
Donates free meters and strips. 800.527.3339
Lilly Care
Donates free insulin – works through physicians to provide medications
to patients in need. 800.545.6962
Medic Alert
Donates free sterling silver bracelets or necklaces. 800.432.5378
Ciba Pharmaceuticals
Can be covered by Medicare, Medicaid or third party insurance as long as
prescriptions are not covered. Eligibility is determined by the physician
based on company guidelines. 800.257.3273
Door-to-Door Medical Supply, Inc.
866.589.1300 or www.doortodoormedicalsupply.com
12. RESOURCE/ASSISTANCE AGENCIES
Area Agency on Aging
Serving Livingston, Macomb, Monroe, Oakland, St. Clair & Washtenaw Counties.
Offers Medical Emergency Program for Seniors (MEPS). 800.852.7795
Casa Maria Family Services
Counseling for low-income families, children’s programs, and medical/prescription
programs. 313.962.4230
Crossroads
Provides 2-week supply of insulin, short-term transportation to doctor’s
appointments, clothing, food, furniture. 313.831.2000
Detroit Agency on Aging
Serving Detroit & Eastern Wayne County – diabetes referral program.
313.222.5330
Calvary Center
MEPS, 2 vouchers offered for prescriptions. 313.881.3374
Community Services of Oakland
Provides prescriptions, medical devices, office visits. 248.542.5860
American Dietetic Association
Meal planning, medical therapy professionals, resource guide for people
with diabetes, referral to a registered dietitian. 312.899.0040
Social Security Administration
800.772.1213
Children’s Special Health Care Services
800.359.3722 or 248.424.7900
Health Care Information by Counties:
Detroit – 313.876.4000
Macomb County – 810.469.5235
Oakland County – 248.858.1280
Wayne County – 734.727.7000
back to top
13. LEGAL ISSUES REGARDING DIABETES
Michigan legislation that provides coverage for diabetes related programs,
equipment and pharmaceuticals took effect. This legislation includes coverage
for all of the following types of diabetes: gestational, insulin-dependent
and non-insulin-dependent. The coverage in this legislation varies according
to types of insurance. Michigan citizens can call the Office of Financial
and Insurance Services toll free at 877.999.6442 for assistance with determining
their coverage.
Additional information:
The legislation for insurers and health maintenance organizations can be
accessed at http://www.michiganlegislature.org (SB 261, PA 425, Section
500.3406p of the Insurance Code) and the legislation for nonprofit health
care corporations,
including Blue Cross Blue Shield, can be accessed at http://www.michiganlegislature.org
(SB 260, PA 424, Section 550.1416b in Act 350). Medicare policies also
have new diabetes coverage. Medicare specific information can be accessed
at http://www.medicare.gov.
More information on Diabetes from the Michigan Department of Community
Health can be accessed at http://www.michigan.gov/mdch.
back to top
14. TRAVELING WITH DIABETES
The Federal Aviation Administration (FAA) has increased security measures
at airports throughout the nation due to the events of September 11. Some
of the precautions taken by the FAA, as well as by individual airlines,
will likely affect passengers with diabetes, who must carry their medical
supplies
when they travel. JDRF continues to monitor the situation and provide updates
whenever available.
Like us, the American Diabetes Association (ADA) is staying in close
contact with the FAA. At this time, there is no official FAA policy on carrying
diabetes supplies, however, the ADA received the following information
verbally from
a representative of the FAA’s Aviation, Security Policy & Planning
Division and has posted it on their Web site. This information represents
the minimum requirements for passengers, and JDRF and the FAA recommend
calling the individual airline for further information, at least one
day in advance
of the scheduled flight.
- Passengers may board with syringes or insulin
delivery systems only if they can produce a vial of insulin with
a professional, pharmaceutical
pre-printed label that clearly identifies the medication. No exceptions
will be made. Since the prescription label is on the outside of
the box containing the vial of insulin, the FAA recommends that passengers
refrain from discarding
their insulin box and come prepared with their vial of insulin
in its original pharmaceutically labeled box.
- For passengers who have diabetes and must
test their blood glucose levels but who do not require insulin, boarding
with their lancets
is acceptable as long as the lancets are capped, and as long
as the lancets are brought
on with the glucose meter that has the manufacturer's name embossed
on the
meter (i.e. One Touch meters say "One Touch," Accucheck meters say "Accucheck").
- Glucagon is dispensed and normally kept
in a pre-printed labeled plastic container or box. We advise travelers
with diabetes to keep their glucagon
kits intact in the original pre-printed, pharmaceutically labeled
containers.
- Contrary to what we were told previously,
because of forgery concerns, prescriptions and letters of medical
necessity will not be accepted.
- FAA security measures apply to travel within
the 50 United States only. Passengers should consult their individual
air carriers for both domestic
(US) and international travel regulations. Be advised that
the FAA's policy and the policy of each airline are subject to change.
In the event that travelers with diabetes encounter problems boarding
their flights, they should contact the FAA Grounds Security Commissioner
at the airport for assistance. We recommend not packing diabetes supplies
in checked baggage, as cargo hold temperatures vary greatly, and the
passenger may need the supplies in flight.
JDRF will continue to stay abreast of FAA policy regarding these issues.
For more information from the FAA, go to www.faa.gov or call 866.289.9673.
back to top
15. SCHOOL ISSUES
When your child returns to school after being diagnosed with diabetes,
it is vitally important that the school is aware of their condition and
knows how to deal with it. Try to meet with the following as soon as possible:
school nurse, counselor, and all teachers and coaches in contact with your
child. Absent this, provide written instructions and include informational
packets (available form JDRF), glucose tablets, juice boxes or other ready
source of sugar, and emergency cards/contact information. Address the need
for unrestricted water, snack and bathroom breaks, the need for regular
blood sugar checks, the need to accompany the child to the office in the
event of a low blood sugar, the symptoms of high or low blood sugar and
effects of high or low blood sugar. Your child must always wear some form
of Medical ID indicating that they are an insulin dependent diabetic.
On our national website (www.jdrf.org), JDRF has a variety of useful information
on diabetes management in schools, including a form for that can be printed
out for teachers. You can find this information in the Diabetes in School
section of the JDRF website at Life With Diabetes. Also on the JDRF web
site, are a number of educational brochures that can be downloaded. These
brochures contain information that is useful for teachers, nurses, and
administrative staff at a school attended by a child with diabetes.
Children with diabetes are covered under The Civil Rights of Students with
Hidden Disabilities Under Section 504 of the Rehabilitation Act of 1973.
The key to this law is that it states that school districts are required
to provide a free appropriate education to students with disabilities,
based on their individualized educational needs. You can read about the
law at the Department of Education website – www.ed.gov. Under this
Act, parents may request a meeting with school officials, at which time
they should work to create a written Section 504 plan, which can include
testing and insulin delivery protocol, as well as a plan for action in
the event of a high or low blood sugar emergency. A sample, as well as
other useful information for students, parents, teachers, and school officials,
is available on the Children with Diabetes website at www.childrenwithdiabetes.com.
However, if after the 504 meeting, parents still feel that the child is
not being granted his or her appropriate rights, they should contact the
local Department of Education Office of Civil Rights.
Parents and teachers who would like additional information or have other
concerns about students with diabetes are invited to contact JDRF Public
Information 800.533.CURE or info@jdrf.org
back to top
16. JDRF BOOKSTORE
Below is a sampling of the books that can purchased from the “publications” section
of JDRF’s national website (www.jdrf.org).
For a complete listing of books, please click here.
Sugar Was My Best Food: Diabetes and Me
Ages: 8–13
By Carol Antoinette Peacock, Adair Gregory, and Kyle Carney Gregory;
Illustrated by Mary Jones
My name is Adair. Adair means “courageous and strong” in Irish.
Two years ago, I got diabetes. This is the story of how I got sick and
how I got better. Diabetes brought big changes for Adair and his family.
The first year was rough, but Adair lived up to his name. Little by little,
he and his family learned to manage his illness. His true story will help
other kids in their struggle with diabetes and any other difficult sickness.
Item #033 Regular Price: $12.95; JDRF Member Price: $10.36
A Magic Ride in Foozbah-Land: An inside look at diabetes
Ages: 3–7
By Jean Betschart, M.N., R.N., C.D.E.
Illustrated by Jackie Urbanovic
With 4-color illustrations on every page, this book takes children on an
imaginative journey through the human body. With simple rhymes, children
will learn what causes diabetes, why they need to take shots, and how insulin
is good for them. Comes with an audiocassette that a child can listen to
alone or with parents.
Item #604 Regular price: $15.95; JDRF Member price: $12.76
Even Little Kids Get Diabetes
Ages: 2–6
By Connie White Pirner
Illustrated by Nadine Bernard Westcott
A storybook parents can read to their child about a little girl with diabetes.
An ideal resource for helping a child deal with the psychological effects
of diabetes.
Item #221 Regular Price: $5.95; JDRF Member Price: $4.76
Taking Diabetes to School
Ages: 6–11
By Kim Gosselin
This book allows elementary school students to teach their classmates about
diabetes. Is it “catching?” Do shots hurt? Why do some kids
eat snacks in school? What’s a “finger-prick?” Can you
still be my friend? And much, much more.
Item #606 Regular Price: $11.95; JDRF Member Price: $9.56
In Control: A Guide for Teens with Diabetes
Ages: 12–18
By Jean Betschart, M.S.N., R.N., C.D.E., and Susan Thom, R.D., L.D., C.D.E.
This invaluable, upbeat guide dispels myths and tackles the real issues
teens with diabetes face. Helps teenagers learn to take good care of their
diabetes without letting it get in the way of their lives. Illustrated
with fun, “off-the-wall” cartoons.
Item #229 Regular Price: $9.95; JDRF Member Price: $7.96
Everyone Likes to Eat: How Children Can Eat Most of the Foods They Enjoy
and Still Take Care of Their Diabetes
Ages: 6–14
By Hugo J. Holleroth, Ed.D., and Debra Kaplan, R.D., M.S., with Anna Maria
Bertorelli, M.B.A., R.D., C.D.E.
Written in conjunction with the Joslin Diabetes Center. Totally revised
and updated, this guide is filled with activities, puzzles, and problem-solving
exercises that show kids how to control their diabetes, yet eat at parties,
holiday time, and fast food restaurants. Also covers school lunches, meal
plans, and snacks. A complete list of choices and exchanges make it fast
and easy. Item #603 Regular Price: $12.95; JDRF Member Price: $10.36
My Sister Rose Has Diabetes
Ages: 6–14
By Monica Driscoll Beatty; Illustrated by Kathy Parkinson
This refreshing, original book describes in their own words the impact
of diabetes on ten-year old Rose and her twelve-year old, nondiabetic brother.
It explains why some of the family’s routines have changed to accommodate
Rose’s needs and the importance of a positive attitude.
Item #031 Regular Price: $8.95; JDRF Member Price: $7.16
It’s Time to Learn about Diabetes
Ages: 7–11
By Jean Betschart, M.S.N., R.N., C.D.E.
This workbook helps school age kids learn everything they need to know
about diabetes, including how to dispel much of the fear associated with
insulin shots and blood tests.
Item #228 Regular Price: $9.95; JDRF Member Price: $7.96
Rufus Comes Home
Rufus, The Bear with Diabetes
Ages: 3–10
By Kim Gosselin
A warm and touching true story about Rufus, the Bear With Diabetes, and
how a mother’s caring creation provided the love and comfort for
her son, newly diagnosed with diabetes. This book, together with the Rufus
plush teddy bear, can provide a unique gift of comfort and education. Kim
Gosselin is a JDRF volunteer and noted author of books for kids with special
needs.
Item #032 Regular Price: $12.95; JDRF Member Price: $10.36
* To purchase Rufus the Bear, call 1-800-SHOP-5050. Price: $24.95
Sarah and Puffle: A Story for Children About Diabetes
By Linnea Mulder
Illustrated by Joanne H. Friar
In this upbeat story, a stuffed animal comes to life just in time to help
a young girl, who is feeling angry and sad about her condition. Puffle’s
funny little rhymes are chock full of valuable advice sure to comfort all
children with diabetes and to further understanding by siblings and friends.
Parents will appreciate the clearly written introduction before sitting
down to giggle — and learn — with their children.
Item #036 Regular Price: $8.95; JDRF Member Price: $7.16
The Best Year of My Life Book 1: Getting Diabetes
Ages 4–10
By Jed Block
While I waited for the results of my second test, I sat on my dad’s
lap and wondered what I had done wrong. "Did I eat too much candy?" So
goes this inspirational story, written in the voice of a newly diagnosed
seven-year-old girl who also illustrated the book. It’s about setback,
resilience and hope. It helps families deal with the jolts and emotional
issues that accompany diabetes.
Item #034 Regular Price: $10.95; JDRF Member Price: $8.76
back to top
17. RESEARCH UPDATES
Since diabetes research information is continually updated, we suggest
you visit the research section of JDRF’s national website (www.jdrf.org)
for current research articles and information. JDRF also publishes a monthly
Research
E-Newsletter to provide the latest information about research
on type 1 diabetes and its complications.
18. JDRF METRO DETROIT AND SOUTHEAST MICHIGAN CHAPTER INFORMATION
The Metro Detroit and Southeast Michigan Chapter of the Juvenile Diabetes
Research Foundation is one of the fastest growing chapters in the United
States and now raises over $2 million annually for diabetes research.
Our volunteers and professional staff are focused on one mission: to raise
funds for research. We do this through the combined efforts of our special
events; Walk to Cure Diabetes, Golf Classic and Promise Ball, major
gifts, planned giving, third party events, committees and board work.
The Chapter looks to our volunteer partners to provide their expertise,
passion and working assistance in the following areas:
Administrative Support: Volunteer
partners who assist the Chapter office with administrative tasks such as
large mailing projects
and event logistics.
This assistance is on an “as need” basis and is generally supported
by student and retiree groups.
Committee Members: Volunteer
partners who actively participated on one or more of the Chapter’s
special event or executive committees. Responsibilities include, but are
not limited to, strategic planning, logistics,
sponsorship,
budgets and proposals.
Special Event Committees
1. Walk to Cure Diabetes
2. Promise Ball
3. Golf Classic
Executive Committees
1. Special Events
2. Major Gifts/Planned Giving
3. Strategic Planning/Finance
4. Government Relations
5. Community Outreach/Communications
6. Nominating
Board members: Volunteers generally qualify to seek nomination to serve
on the Chapter Board of Directors after actively participating on one
or more of the Chapter committees for at least a year.
back to top
19. JDRF MEMBERSHIP INFORMATION
By becoming a Member of JDRF you are helping to find a cure for diabetes
and its complications. We hope you'll take the time to find out more about
JDRF-funded diabetes research by visiting the research portion of our National
web site (www.jdrf.org).
A JDRF Membership is accompanied by a one-year subscription to Countdown
Magazine and its accompanying Countdown
For Kids, and various other premiums.
To
register on-line to become a member, please click here or call JDRF
(800) 533-CURE (2873).
20. DIABETES DICTIONARY
This dictionary consists of terms that you will hear when responding to a child
with diabetes. It has been compiled so that you can become familiar with words
associated with diabetes and are used by parents, doctors, nurses and other health
care professionals. Individuals with diabetes will also use certain terms when
describing what is going on with them when they experience symptoms. This is
just a selection of the most common terms used and will be helpful as a guide
and will provide valuable information for principals, school personnel, teachers,
parents, volunteers, students and other individuals in a school setting.
The words are listed in alphabetical order. Resources for this listing include
but are not limited to: National Diabetes Information Clearinghouse, National
Institute of Diabetes and Digestive and Kidney Diseases National Institutes of
Health, Juvenile Diabetes Research Foundation, and the American Diabetes Foundation.
This information was compiled by Grenae D. Dudley, Ph.D., mother of a child with
diabetes and Kenneth E. White, step-father of a child with diabetes.
Acetone (as´ -
_ - t_n)
A chemical formed in the blood when the body uses fat instead of glucose (sugar)
for energy. If acetone forms, it usually means that the cells do not have enough
insulin, or cannot use the insulin that is in the blood, to use glucose for energy.
Acetone passes through the body into the urine. Someone with a lot of acetone
in the body can have breath that smells fruity and is called “acetone breath.”
Acidosis (as - i´ -
d_´- s_s)
Too much acid in the body. For a person with diabetes, this can lead to diabetic
ketoacidosis.
Antiseptic (an´ -
t_ _ s_p´ - t_k)
An agent that kills bacteria. Alcohol is a common antiseptic. Before injecting
insulin, many people use alcohol to clean their skin to avoid infection.
Aspartame (_s´ -
p_r - t_m)
A man-made sweetener that people use in place of sugar because it has very few
calories.
Autoimmune Disease (_t´-
_ - _ - my_n´)
Disorder of the body’s immune system in which the immune system mistakenly
attacks and destroys body tissue that it believes to be foreign. Insulin-dependent
diabetes is an autoimmune disease because the immune system attacks and destroys
the insulin-producing beta cells of the pancreas.
Beta Cell (b_´ -
tah s_l)
A type of cell in the pancreas.
Beta cells make and release insulin, a hormone that controls the level of glucose
(sugar) in the blood.
Blood Glucose (bl_d gl_´ -
k_s)
The main sugar that the body makes from the three elements of food-proteins,
fats, and carbohydrates-but mostly from carbohydrates. Glucose is the major source
of energy for living cells and is carried to each cell through the bloodstream.
However, the cells cannot use glucose without the help of insulin.
back to top
Blood Glucose Meter (bl_d
gl_´ - k_s m_´ - t_r )
A machine that helps test how much glucose (sugar) is in the blood. A specially
coated strip containing a fresh sample of blood is inserted in a machine, which
then calculates the correct level of glucose in the blood sample and shows the
result in a digital display. Some meters have a memory that can store results
from multiple tests.
Blood Glucose Monitoring (bl_d
gl_´ - k_s mon´ - i - tôr´ -
ing)
A way of testing how much glucose (sugar) is in the blood. A drop of blood, usually
taken from the fingertip, is placed on the end of a specially coated strip, called
a testing strip. The strip has a chemical on it that makes it change color according
to how much glucose is in the blood. A person can tell if the level of glucose
is low, high or normal in one of two ways. The first is by comparing the color
on the end of the strip to a color chart that is printed on the side of the test
strip container. The second is by inserting the strip into a small machine, called
a meter, which “reads” the strip and shows the level of blood glucose
in a digital window display.
Blood testing is more accurate than urine testing in monitoring blood glucose
levels because it
shows what the current level of glucose is, rather than what the level was an
hour or so previously.
Blood Sampling Device
A small instrument for pricking the skin with a fine needle to obtain a sample
of blood to test for glucose (sugar). Also see: Blood glucose monitoring.
Blood Sugar
See: Blood glucos
Brittle Diabetes (br_t´ -
tul)
Antiquated term; not a distinct form of diabetes. A term used when a person’s
blood glucose (sugar) level often swings quickly from high to low and from low
to high. Also called labile and unstable diabetes.
back to top
Calorie (kal´ -
_ - r_ )
Energy that comes from food. Some foods have more calories than others. Fats
have many calories. Most vegetables have few. People with diabetes are advised
to follow meal plans with suggested amounts of calories for each meal and /or
snack. Also See: Meal plan: exchange lists.
Carbohydrate (kar´ -
b_ - h_ - dr_t)
One of the three main classes of foods and a source of energy. Carbohydrates
are mainly sugars and starches that the body breaks down into glucose (a simple
sugar that the body can use to feed its cells). The body also uses carbohydrates
to make a substance called glycogen that is stored in the liver and muscles for
future use. If the body does not have enough insulin or cannot use the insulin
it has, then the body will not be able to use carbohydrates for energy the way
it should. This condition is called diabetes. Also see: Fats; protein.
Chronic (kr_n´ -
_k)
Present over a long period of time. Diabetes is an example of a chronic disease.
Coma (k_´ - m_h)
A sleep-like state; not conscious. May be due to a high or low level of glucose
(sugar) in the blood. Also See: Diabetic coma.
Comatose (k_´ -
m_h - t_s)
In a coma; not conscious.
Complications of Diabetes (k_m
- pl_ - k_´ - sh_ns)
Harmful effects that may happen when a person has diabetes. Some effects, such
as hypoglycemia, can happen any time. Others develop when a person has had diabetes
for a long time. These include damage to the retina of the eye (retinopathy),
the blood vessels (angiopathy), the nervous system (neuropathy), and the kidneys
(nephropathy). Studies show that keeping blood glucose levels as close to the
normal, non-diabetic range as possible may help prevent, slow, or delay harmful
effects to the eyes, kidneys, and nerves.
Controlled Disease
Taking care of oneself so that a disease has less of an effect on the body. People
with diabetes can “control” the disease by staying on their diets,
by exercising, by taking their medicine if it is needed, and by monitoring their
blood glucose. This care will help keep the glucose (sugar) level in the blood
from becoming either too high or too low.
back to top
Dehydration (d_´ -
h_ - dr_´ - sh_n)
Great loss of body water. A very high level of glucose (sugar) in the blood stream
cause loss of a great deal of water and the person becomes very thirsty.
Dextrose (d_ks´ -
tr_s)
A simple sugar found in the blood. It is the body’s main source of energy.
Also called glucose. Also see: Blood glucose.
Diabetes Mellitus (d_´ -
ah - b_´ - t_z m_l´ - i -t_s)
A disease that occurs when the body is not able to use sugar as it should. The
body needs sugar for growth and energy for daily activities. It gets sugar when
it changes food into glucose (form of sugar). A hormone called insulin is needed
for the glucose to be taken up and used by the body. Diabetes occurs when the
body cannot make use of the glucose in the blood for energy because either the
pancreas is not able to make enough insulin or the insulin that is available
is not effective. The beta cells in areas of the pancreas called the islets of
Langerhans usually make insulin. For more details information and facts on type
1 diabetes and type 2 diabetes, please visit www.jdrf.org.
Diabetic Coma (k_´ -
m_h)
A severe emergency in which a person is not conscious because the blood glucose
(sugar) is too low, the person has hypoglycemia; if the level is too low, the
person has hypoglycemia; if the level to too high, the person has hyperglycemia
and may develop ketoacidosis. Also see: Hyperglycemia; hypoglycemia; diabetic
ketoacidosis.
Diabetic Ketoacidosis (DKA) (k_´-
t_ - as´ - _ - d_´ - s_s)
Severe, out of control diabetes (high blood sugar) that needs emergency treatment.
DKA happens when blood sugar levels get too high. This may happen because of
illness, taking too little insulin, or getting too little exercise. The body
starts using stored fat for energy, and ketone bodies (acids) build up in the
blood.
Ketoacidosis starts slowly and builds up. The signs include nausea and vomiting,
which can lead to loss of water from the body, stomach pain, and deep and rapid
breathing. Other signs are a flushed face, dry skin and mouth, a fruity breath
order, a rapid and weak pulse, and low blood pressure. If the person is not given
fluids and insulin right away, ketoacidosis can lead to coma and even death.
Diet Plan
See: Meal Plan
Dietitian (d_ - _ - tish´ -
_n)
An expert in nutrition who helps people with special health needs plan the kind
and amounts of foods to eat. A registered dietitian (R.D.) has special qualifications.
The health care team for diabetes should include a dietitian, preferably an R.D.
DKA
See: Diabetic ketoacidosis
back to top
Emergency Medical Identification
Cards, bracelets, or necklaces with a written message used by people with diabetes
or other medical problems to alert others in case of a medical emergency such
as coma.
Endocrinologist (_n´ -
d_ – kr_ - n_l´ - _ - jist)
A doctor who treats people who have problems with their endocrine glands. Diabetes
is an endocrine disorder. See: Endocrine glands.
Exchange Lists
A grouping of foods by type to help people on special diets stay on the diet.
Each group lists food in serving sizes. A person can exchange, trade, or substitute
a food serving in one group for another food serving in the same group. The lists
put foods in six groups: (1) starch/bread, (2) meat, (3) vegetables, (4) fruit,
(5) milk, and (6) fats. Within a food group, each serving has about the same
amount of carbohydrate, protein, fat and calories.
Fats
One of the three main classes of foods and a source of energy in the body. Fats
help the body use some vitamins and keep the skin healthy. They also serve as
energy stores for the body. In food, there are two types of fats:
saturated and unsaturated.
Saturated fats are solid at room temperature and come chiefly from animal food
products. Some examples are butter, lard, meat fat, solid shortening, palm oil,
and coconut oil. These fats tend to raise the level of cholesterol, a fat-like
substance in the blood.
Unsaturated fats, which include monounsaturated fats and polyunsaturated fats,
are liquid at room temperature and come from plant oils such as olive, peanut,
corn, cottonseed, sunflower, safflower, and soybean. These fats tend to lower
the level of cholesterol in the blood. See: Carbohydrate; protein.
Food Exchange
See: Exchange lists
Foot Care
Taking special steps to avoid foot problems such as sores, cuts, bunions, and
calluses. Good care includes daily examination of the feet, toes and toenails
and choosing shoes and socks or stockings that fit well. People with diabetes
have to take special care of their feet because nerve damage and reduced blood
flow sometimes mean they will have less feeling in their feet than normal. They
may not notice cuts and other problems as soon as they should.
Fructose (fr_k´ -
t_s)
A type of sugar found in many fruits and vegetables and in honey. Fructose is
used to sweeten some diet foods. It is considered a nutritive sweetener because
it has calories.
back to top
Gestational Diabetes Mellitus (GDM) (j_s
- t_´ - sh_n - _l)
A type of diabetes mellitus that can occur when a women is pregnant. In the second
half of the pregnancy, the woman may have glucose (sugar) in the blood at a higher
than normal level. However, when the pregnancy ends, the blood glucose levels
return to normal in about 95% of all cases.
Glucagon (gl_´ -
k_ - g_n)
A hormone that raises the level of glucose (sugar) in the blood. The alpha cells
of the pancreas (in areas called the islets of Langerhans) make glucagons when
the body needs to put more sugar into the blood.
An injectable form of glucagon, which can be bought in a drug store, is sometimes
used to treat insulin shock. The glucagon is injected and quickly raises blood
glucose levels.
Glucose (gl_´ -
k_s)
A simple sugar found in the blood. It is the body’s main source of energy,
also known as dextrose. See: Blood glucose.
back to top
Home Blood Glucose Monitoring
A way a person can test how much glucose (sugar) is in the blood. Also called
self- monitoring of blood glucose. See: Blood glucose monitoring.
Human Insulin (hy_´ -
m_n _n´ - s_ - l_n)
Man made insulins that are similar to insulin produced by your own body. Human
insulin has been available since October 1982.
Hyperglycemia (h_´ -
p_r – gl_ - s_´ - m_ - ah)
Too high a level of glucose (sugar) in the blood; a sign that diabetes is out
of control. Many things can cause hyperglycemia. It occurs when the body does
not have enough insulin or cannot use the insulin it does have to turn glucose
into energy. Signs of hyperglycemia are a great thirst, a dry mouth, and a need
to urinate often. For people with insulin-dependent diabetes, hyperglycemia may
lead to diabetic ketoacidosis.
Hypoglycemia (h_´ -
p_ – gl_ - s_´ - m_ - ah)
Too low a level of glucose (sugar) in the blood. This occurs when a person with
diabetes has injected too much insulin, eaten too little food, or has exercised
without extra food. A person with hypoglycemia may feel nervous, shaky, weak,
or sweaty, and have a headache, blurred vision, and hunger. Taking small amounts
of sugar, sweet juice, or food with sugar will usually help the person feel better
within 10-15 minutes. See: Insulin shock.
back to top
Implantable Insulin Pump (_m – plant´ -
_ - b_l)
A small pump placed inside of the body that delivers insulin in response to commands
from a hand held device called a programmer.
Injection (_n - j_k´ -
sh_n)
Putting liquid into the body with a needle and syringe. Person with diabetes
injects insulin by putting the needle into the tissue under the skin (called
subcutaneous). Other ways of giving medicine or nourishment by injection are
to put the needle into a vein (intravenous) or into a muscle (intramuscular).
Injection Sites
Places on the body where people can inject insulin most easily. These are:
- The outer area of the upper arm
- Just above and below the waist, except the area right around the
navel (a 2-inch circle)
- The front of the thigh, midway to the outer side, 4 inches below
the top of the thigh to 4 inches above the knee.
These areas can vary with the size of the person.
Injection Site Rotation
Changing the places on the body where a person injects insulin. Changing the
injection site keeps lumps or small dents from forming in the skin. These lumps
or dents are call lipodystrophies. However, people should try to use the same
body area for injections that are given at the same time each day- for example,
always using stomach for the morning injection or an arm for the evening injection.
Using the same body area for these routine injections lessens the possibility
of changes in the timing and action of insulin.
Insulin (_n´ -
s_ - l_n)
A hormone hat helps the body use glucose (sugar) for energy. The beta cells of
the pancreas (in areas called the islets of Langerhans) make the insulin. When
the body cannot make enough insulin on its own, a person with diabetes must inject
insulin made from other sources, i.e., beef, pork, human insulin (recombinant
DNA origin), or human insulin (pork-derived, semisynthetic).
Insulin-Dependent Diabetes Mellitus (IDDM)
A chronic condition in which the pancreas makes little or no insulin because
the beta cells have been destroyed. The body is then not able to use the
glucose (blood sugar) for energy. IDDM usually comes on abruptly, although
the damage
to the beta cells may begin much earlier. The signs of IDDM are a great thirst,
hunger, a need to urinate often, and a loss of weight. To treat the disease,
the person must inject insulin, follow a diet plan, exercise daily and test
blood glucose several times a day. IDDM usually occurs in children and adults
who are
under the age of 30. This type of diabetes used to be known as “juvenile
diabetes, “juvenile-onset diabetes” and “ketosis-prone diabetes.” It
is also called Type 1 diabetes mellitus.
Insulin-Induced Atrophy (at´ -
r_ - f_)
Small dents that form on the skin when a person keeps injecting a needle in the
same spot. They are harmless.
Insulin Induced Hypertrophy (h_´ p_r – tr_
- f_)
Small lumps that form under the skin when a person keeps injecting a needle in
the same spot.
Insulin Pen
An insulin injection device the size of a pen that includes a needle and holds
a vial of insulin. It can be used instead of syringes for giving insulin injections.
Insulin Pump
A device that delivers a continuous supply of insulin into the body. The insulin
flows from the pump through a plastic tube that is connected to a needle inserted
into the body and taped in place. Insulin is delivered at two rates: a low, steady
rate (called the basal rate) for continuous day-long coverage, and extra boosts
of insulin (called bolus doses) to cover meals or when extra insulin is needed.
The pump runs on batteries and can be worn clipped to a belt or carried in a
pocket. It is used by people with insulin-dependent diabetes.
Insulin Reaction (r_ - _k´ - sh_n)
Too low a level of glucose (sugar) in the blood; also called hypoglycemia. This
occurs when a person with diabetes has injected too much insulin, eaten too little
food, or exercised without extra food. The person may feel hungry, nauseated,
weak, nervous, shaky, confused, and sweaty. Taking small amounts of sugar, sweet
juice, or food with sugar will usually help the person feel better within 10-
15 minutes. See: Hypoglycemia; insulin shock.
Insulin Shock (sh_k)
A severe condition that occurs when the level of blood glucose (sugar) drops
quickly. The signs are shaking, sweating, dizziness, double vision, convulsions,
and collapse. Insulin shock may occur when an insulin reaction is not treated
quickly enough. See: Hypoglycemia; insulin reaction.
back to top
|
|


         
|
 
   
|